tag:blogger.com,1999:blog-4407973600039805618.post8731668578979193187..comments2023-10-07T02:28:43.923-05:00Comments on AngelicEars: Genetic TestingHunter's Mommyhttp://www.blogger.com/profile/01527129723974391558noreply@blogger.comBlogger4125tag:blogger.com,1999:blog-4407973600039805618.post-82143227960908036152012-01-17T05:59:53.441-06:002012-01-17T05:59:53.441-06:00The unknown is always hard and it sounds like you ...The unknown is always hard and it sounds like you all are taking the steps you need to move forward and find answers. Aiden has moderate-severe balance issues (depending on the day) and now I wonder if we need to get him genetic testing for this too (he does have EVA, which some say you can't have Ushers with this and some say you can). How exciting that Hunter's CI surgery is approaching. Good luck with all the upcoming appts! Looking forward to hearing all about them.tammyhttps://www.blogger.com/profile/11440760114820803415noreply@blogger.comtag:blogger.com,1999:blog-4407973600039805618.post-1277520269491796122012-01-16T12:46:47.925-06:002012-01-16T12:46:47.925-06:00Remember that, regardless of the results, there is...Remember that, regardless of the results, there is much hope for children today with Usher Syndrome. So many of the top researchers say that they do not expect them to fully go blind because of the rapid pace at which research is progressing. <br /><br />Your comments about counting the hats and wigs for pediatric cancer patients hit home. The same day we got Rachel's Usher diagnosis, a classmate of hers from high school (They had just graduated two months before), who had been experiencing debilitating headaches all year, died from a brain aneurysm. It made us feel almost lucky. As I told Rachel, she has something this girl can never have, hope.MKChaikofhttps://www.blogger.com/profile/01986056012049882257noreply@blogger.comtag:blogger.com,1999:blog-4407973600039805618.post-88221175457394717592012-01-15T19:38:38.650-06:002012-01-15T19:38:38.650-06:00Thanks for posting this update. This is tough and ...Thanks for posting this update. This is tough and not knowing is even worse. Your family is in my thoughts and prayers. I'm sure many people have said this, but Hunter is extremely lucky to have you and your husband. No matter what the results are, he is going to have a great advantage for the best opportunities with you as an advocate. I know it can be hard, and sometimes it feels like it is hard EVERY SINGLE DAY and you can't catch a break, but it is worth it. Keep up the great work at being a fierce momma for your little man. ;)Emilyhttps://www.blogger.com/profile/17391959098262574838noreply@blogger.comtag:blogger.com,1999:blog-4407973600039805618.post-69285797858656175642012-01-14T23:15:04.061-06:002012-01-14T23:15:04.061-06:00Hello! would you consider adding your blog on Deaf...Hello! would you consider adding your blog on Deaf Village Aggegrator?<br /><br /> http://deafvillage.com/news<br /><br /> Vivie - Deaf Village ModeratorViviehttps://www.blogger.com/profile/00392288497351450072noreply@blogger.com