I can't believe it, it's been 365 days, TODAY, since I have written on the blog! Since that time, we hosted our first race under U...

It's been a while, hasn't it? Well we have had lots going on down south, one of those things being a newly created foundation, Ush O...

Hi there, hope all of you are doing well.   I wanted to give you a short up-date  on Hunter's  (who turned 5 on March 12 ) latest tri...

This is one of those times where I'm hesitant to write how I really feel. My heart is beating fast, but I've been having this naggin...

So this little thing that I'm a part of called the Usher Syndrome Coalition is putting together this little fundraiser for this little...

The man in the picture below, Mark Dunning, Chairman of the Usher Coalition I might add, thinks and truly believes he is just a regular guy....

I've grown to hate the word perfect. Since the day Hunter was born, the word perfect made me cringe. People all around me were having ba...

We traveled to New Orleans a few months ago for Hunter's annual mapping update and to visit a retinal specialist who spoke at the Usher ...

When we started this Usher Syndrome journey with Hunter, we said we were going to give Usher Syndrome a new definition, a new face, a new ho...

Our family went to Disney World in February as part of the Cochlear Celebration Convention. I have started a separate post about the conven...