A lot of people are still not fully aware of what's going to happen. So here's a little breakdown:
March 27th is the surgery for the implant.
April 4th is his post op appointment to check that all is healing well.
If all is healing well, we will schedule an activation appoinment to "turn on" his ears three weeks from that first week in April. So hopefully we will have an appointment scheduled for his activation the week of April 23rd.
Something new- After our post op appointment on April 4th, we will be going to Tulane to draw blood for genetic testing. We will be testing for the most common Acadian/French heritage strand of Usher Syndrome. This test will probably take around 4 weeks to get the results.
If you can do anything over this next week, it's pray for the success of the implant surgery. Pray for the surgeon and his entire surgery team.
If you can do anything over the next 6 weeks, it's pray that Hunter does not have Usher Syndrome. Just.please.pray.with.us.
With all of my love and gratefulness-
Thank YOU,
Elise
Sending prayers your way! I can't say enough good things about Ochsner's, they were beyond wonderful to us for Addison's heart surgery. I'm sure your little guy will be in great hands:) will ya'll be staying at the Brenthouse? That was a lifesaver for us
ReplyDeleteJill
Praying for you all! If I can give any advice it would be to know and accept that it will be rough at first, but WILL GET BETTER!! Stay strong and find faith in knowing that this is the best thing you'll do for him! Best Wishes!
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