My
mom seems to think it went fairly well considering he is in constant motion and
was strapped in a car seat a majority of the day. But if he wasn’t sleeping or
he didn’t have food.in.mouth he was whining!
The
check up went well, he wanted to climb and crawl all over and up everything in
the waiting room and in the doctor’s office. I sat there cringing because I
used to get sick thinking of all the germs that are probably on the toys
in a doctors waiting room. Never say never, because it kept it occupied and I
was willing to do whatever it took to keep him tame. We did cover him with hand sanitizer afterwards though.
Dr.
Molony took the tape off of the incisions. I tugged at the tape a little
thinking there's no way he will take it off, it's still on there pretty well.
He will probably let it fall off on its own. Nope.
One side even ripped a bit of the scab off. Hunter fussed a little but it
didn't last long. Not NEARLY as long as when he fell in the waiting room before
his next appointment, but I will get to that later....
Dr.
Molony was very nice, some say he's not very personable but we had absolutely
no issues with him (his staff was a different story, but at least we are done
with them forever!) he said the next time he sees Hunter he should be
walking and telling him hi in the hall! We are so excited to get his ears
turned on April 27th. We LOVE LOVE LOVE the audiologist and cannot wait to
start working with her!
Next
we made our way downtown to Tulane to draw the blood. After a bit of confusion
regarding appointment times, we got there around 12:30. They had scheduled us
for 11... But I told everyone who called to verify that we had an appt at
ochsners at 11, and that we wouldn't be there until 12-12:30. But apparently
that didn't change anything. So we had a little wait, and while Hunter was
playing in yet another germ infested waiting room, he slipped and fell on his
head. He cried, and cried, and cried and cried and cried.... Longer than when
they actually drew the blood! A nurse who just came back from lunch took us back. She said she doesn't normally draw blood on babies, but he had one good vein she was able
to get to. I had to hold him down, and I think that was the worst part. My mom
was in the hall with her fingers jammed in her ears while he cried, and she
blessed the vial of blood with Padre Pio oil and with a relic of St. Katharice Drexel. Saint Padre Pio oil is to help us implore
God's loving tender mercy for the sick. We believe that if Hunter doesn't have
Usher Syndrome, it will be a miracle. The results take about a month to come
in. If it comes back negative, that means Hunter does not have the
French/Acadian strand of Ushers. We will go from there and do more genetic
testing if that is the case so that we can determine exactly what the cause of
the hearing loss is. Either way, it's better knowing for his medical records in
the years to come.
If
it comes back positive ...well, I've got a plan. Although I'm not ready to elaborate on
it, I'm ready to fight this thing with all of the energy I've got, plus some.
I'm ready for whatever the results may bring us... I'm ready to step up to the
plate and be the best advocate that I can for my son. This will not beat us down. I'm so ready.
It's kind of hard to see, but you can see the incision right along his ear, and there's another one diagonal under his hair starting at the top of his ear going to the left. He was asleep when I took this.
Here is the other side, same thing with the incision along his ear and another one diagonal. This was before we actually got to wash his hair for real in a week, so there's still some crud on there. I will get better ones soon.
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