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Sunday, October 28, 2012

6 Months Post Activation

Saturday, October 27th marks 6 months since my baby boy first got his "ears" turned on. What an exciting new world everything has become to Hunter! I have been trying to keep a running list of words that Hunter is saying on a consistent basis, but we have lost count because there are so many! I am pretty sure it's safe to say that he will attempt to repeat anything to tell him to. And about 80% of the time, it sounds correct! Every day we hear 2-3 new words come out of his mouth, and he has even put a couple of words together here and there.

Our AV therapist did a progress test on Hunter last week at therapy, and she was amazed to see how far he has come in only 6 months. I think we are all pretty blown away at how far he has come. We never imagined that at 19 months Hunter would understand a majority of what we are saying, and repeating so many words after only hearing for 6 months.

As far as OT and walking are concerned..... we are still making baby steps, which means progress! He even stood alone for a couple of seconds at a friend's house this past weekend. We are getting there... 21-24 months, that's the average time frame for a baby with Usher Syndrome to walk. But I have said the one positive thing about walking with him and holding his hand is that we are able to talk to him so much, every step we take we are talking. Rather than a 19 month old running from us, we are with him able to teach him at the same time. So there is a positive. But I think we sleep just as hard as he does, because we go go go go go just as hard as he does!

Here are a few pictures from this past weekend. Great times with great family and friends!


Hunter's 1st pony ride!





Superman!




A little therapy pushing Kell in the stroller all by himself! And zero face plants I must add!
(This is the same boy who refuses to walk with any kind of walker at home.)



After one very busy day! (I love sleeping pics!)




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