Since Hunter has been attending AV therapy every 2 weeks for the past few months, it has taken a couple of months to issue and score his progress tests, but we finally got the results back last week and I wanted to share them.
Hunter was issued a general language test, an articulate language test, a receptive vocabulary test and an expressive language test.
For every language test, 100 is dead average. Anywhere between 85
and 115 is average. On the articulate language test (which is expressing oneself easily in clear and effective language), Hunter got a 93, which is in normal range. He got 28
errors which is perfectly normal for a 2.5 year old. And that's a normal hearing 2.5 year
old, not a 2.5 year old born deaf.
His vocabulary test, the receptive vocabulary (vocabulary
that he understands using pictures, and what he understands from what other people
are saying). 100 is average and he got a 108, which is 8 standard points above
average.
Then there is expressive vocabulary (show him a picture and say what is
this). 100 is normal, he got 121, 21 standard points above normal, so he did
exceptionally well on that.
Last test was overall language, it’s a little broader than
just vocabulary. It’s his ability to put words together, grammar, sentence
structure, just a more broad view of his whole language development. It involves auditory
comprehension and his expression, what he’s able to produce himself. His
understanding, expression and total all fell above the average line. He got 111,
11 standard points higher than normal so all of his scores are looking very
good.
Hunter's AV therapist tells us that he seems to be right on track.
There are certain letters that he would say at the beginning
of a word, like a w for an r, which is normal for a 2.5 year old. He says w for
L. But those don’t development until much later. At the end of the word he
would do a k for a g, which is normal as well. Nk for ng, sh for ch, and t for j at the
end of the word is appropriate for his age.
Even though we got the great new that Hunter has "graduated" from AV therapy at this time, we agreed to have a couple more sessions in order to
transition his therapy sessions to take home therapy ideas to keep up with
Hunter at home.
Shelley (our original AV therapist) called in to talk about Hunter’s progress, and she
said Hunter’s vocabulary scores are probably her highest ones yet. She
acknowledges our support system and all of the people in Hunter’s life who are
so involved in his progress. She complimented us getting on board right out of
the gate, not hesitating about the implants and the therapy, and making it a
part of our everyday lives. Almost every person in our family has joined in on these sessions
and they know what kind of conversations to have with Hunter and the questions
to ask him to constantly keep him moving forward. And even though Hunter’s
sitter wasn’t 100% on board with strictly AV therapy, she has really come
around and pushed Hunter further than any of us.
She did warn us that testing of a 3.5 year old varies
greatly from a 2.5 year old. A 2.5 year old should understand around 500 words,
and at 3.5 it more than doubles to around 1200+ words. She said not to get
comfortable that he is all caught up and to keep reading to him and keep
teaching him. She said a 2.5 year old and a 3.5 year old have totally different
expectations.
They want us to know what to expect and to know what to look
for when we are reading to Hunter every day so they will give us the tools to
know what to expect. She doesn’t expect him to move down from the normal range,
but if he does it may be because of how much they expect out of a 3.5 year old.
She just keep stressing not to stop doing what we are doing.
One thing going for Hunter is that he has a fantastic
memory. When we read him books, the following week he is reading bits and
pieces from the book back to us. We can tell he isn’t actually reading the
words because he's not even looking at the words, but he remembers bits and pieces from each page just from the repetitiveness
of hearing the book for a week straight every night.
I always get nervous when people ask me where Hunter will be
going to school and when he will start. #1, he’s my baby and I’m NOT ready for
him to start school. Or even a preschool at that. A lot is riding on Baby
Harrison and whether or not he is hearing. As most of you know, our 5 year plan
includes building a house in New Iberia near my parents and Blair’s. But if
Harrison needs implants like Hunter, we would like for him to stay at Nini’s
for at least 2 years so that she can help us get him where he needs to be. She
is irreplaceable and 100% worth staying in Youngsville for that period of time
if need be. Being near family is super important to Blair and myself, and we
know we will get there eventually, once we make sure our children are where
they need to be. If we do stay in Youngsville for another few years, I would
like to look into putting Hunter in a preschool starting possibly in the fall.
But these are all factors that will be decided after Harrison is born. Again,
he has a 25% chance of having Usher Syndrome like Hunter, and whether or not he
passes his newborn hearing screening in the hospital will tell us, obviously,
whether or not he is deaf, but will paint the bigger picture as well as to
whether or not he will have Usher Syndrome.
Shelley also mentioned an amplification system that a lot of
preschool teachers use when they have a hearing impaired child. It’s a very
little amplifier that makes a world of difference to bring the teacher’s voice above
everyone else’s in the classroom. It’s a little uneasy that we have to start
thinking about this, but it’s a part of the Cochlear implant process and just
comes with the territory. As amazing as this device is, it’s still a device.
It’s not a natural form of hearing or anything close to that. It’s Hunter’s way
of hearing, and a classroom setting is not something he has had to adapt to yet
so it’s going to be a way for Hunter to have to really concentrate on the
teacher to be able to hear what’s coming from her mouth with a lot of
background noise going on at the same time. He has always been in a smaller
setting (in-home sitter) with not a lot of children which was exactly what we
wanted when he was learning to hear and speak. The next step, is learning how
to hear in a crowded environment on an every day basis. He will have to learn to differentiate the
teacher’s voice from other children’s voices, as would any hearing child, it
just may take a little longer for Hunter to master this skill that seems second
nature to his hearing peers.
I will be posting more soon, including recent family pictures :)
Sorry it has taken me so long to post an update, but as always, thank you for being a part of our journey!
elise
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