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Wednesday, January 25, 2012

Simple Facts

Happy Wednesday everybody!

I just wanted to give you all a few updates.... Last week our genetic counselor went to Women's and Children's hospital while he was in Lafayette to see if we could get Hunter's blood work drawn in Lafayette rather than having to drive to New Orleans. He called on Thursday to let us know that they do not have a contract to send blood work to Harvard, but that they would review his case and possibly make an exception. If not, we will just have to bring Hunter to New Orleans to get the blood drawn. Easier said than done during tax season! But beggars can't be choosers, we will make it happen!

Today we had a regular checkup with the pediatric ophthalmologist. He just checked his prescription and all looked great! He also said he didn't see anything abnormal with the retina, which is great! Even though signs of Usher don't normally show up until closer to the age of 10, on average. We told him about our decision to have genetic testing done, and asked if there are any retinal specialists in Lafayette. He said there are a few, but there is one who deals with babies more often who he would refer us to if need be. It was almost like I didn't skip a beat talking to him about Usher Syndrome. And it's not that I'm convinced he has it, but I thinking knowing we will have a game plan in case he does, makes me feel better. For the time being at least...

Last week we also saw our special teacher and OT. Our special teacher said it seemed like all of her babies were at a standstill as far as progress is concerned, but that Hunter was her student of the week! Yay! He was crawling all over and pulling up on everything. He may not have the best balance to stand up yet, but he sure has the guts to try it! He and our OT were on our kitchen floor exploring all kinds of new things. She was raving over how well he has done since she started working with him, and he deserves all the credit!

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