All in the same week as this big press release and TV interview, Sonia Desormeaux, founder of Eye on Jacob (www.eyeonjacob.org) and her amazing son Jacob came to Louisiana for Mardi Gras weekend. Back in October, she came to town so that we could start planning a fundraiser in Acadiana to raise money for Usher Syndrome research. When she and I first got in contact with each other, she was telling me of all these fundraisers that she does in California, where she and her sons live. When I suggested doing one in LA, where Usher 1C is most prevalent, she said she had always wanted to do one here since this is where her family and friends still reside, but she never had the push to do it. So I was her push :)
The date: Thursday, September 19, 2013
The venue: The Victorian, Broussard, LA
Cocktail type attire, silent and live auction items with celebrity guest MCs such as State Senator, Freddie Mills, Scott Angelle, Public Service Commissioner, and former NFL player Jake Delhomme. We will also have some celebrity guest waiters and waitresses from around the Acadiana area.
We are in the process of getting everything together, but the when and where are set in stone, and those are the most important things!
I will be posting more about the event after tax season, but if anyone you know would like to donate items for the auctions or would like to be a corporate sponsor, please feel free to email me at email@example.com. We have a solicitation letter in the works, along with a donation form and sponsorship levels. It’s going to be a good time with good food, drinks and great people. Jennifer Lentz, from LSU- New Orleans, will be a guest speaker, along with a few people from the Acadiana area present who are living with Usher Syndrome.
All I ask for now is to spread the word, talk about it to people, introduce Usher Syndrome to your family, friends and colleagues. Word of mouth is a powerful thing and can have such a positive impact on finding a cure for Usher Syndrome!